Monthly Archives: October 2014

Counting to 100

100 days, Myeloma, transplant

A Couple of Cool HeadsSO I GOT SPRUNG in just 15 days from the transplant center, but that doesn’t mean I’m really free — at least not yet. For the next 2-3 months I need to live on guard against the stray germ, while my immune system rebuilds and my blood counts come back to normal.

One of our new friends from the Myeloma patient support group called it “100 days of house arrest,” which drew chuckles and knowing nods from others who had gone through the  transplant experience.

Most of the precautions make intuitive sense if you give the matter even 10 minutes of thought: Avoid raw or undercooked foods (alas, no sushi or eggs over easy). Wash vegetables carefully. Stay away from crowds and public spaces. Wash your hands a lot. Continue reading Counting to 100 →

On Parole

hair, Journal, stem cell

Free at LastTHEY SAY time off for good behavior is seldom granted in the stem-cell transplant penal system.  And yet, there I was yesterday afternoon with my bag packed, climbing into the car with Val at the wheel to make a quick getaway.

It was 15th day of my hospitalization and the absolute shortest time frame anyone said was possible. I win!

That’s not to say the entire sentence is fulfilled. My medical parole officers insist that I check in daily for blood draws, catheter care, and various infusions over the coming weeks.

Still, it was pretty sweet sleeping in our own bed last night, even if I awakened every two hours or so without reason. It was as if I was anticipating those wee-hours nurses’ visits for medications and “vitals.” Continue reading On Parole →

Some Low Days

emotions, neutrophil, transplant, treatment

IT’S DAY SEVEN after the stem cell infusion and the waiting is the hardest part.

I’m not depressed, just fatigued, with a general lack of focus, a sore throat, and poor appetite. Of course they tell me this is precisely what is expected of patients like me.

The treatment process is working. The blood labs show my neutrophil levels have fallen nearly to zero. In another day or so, they will begin a gradual recovery as my bones begin to build a new immune system.

Since I now have very little immune response, the treatments will focus on preventing infections. Masks and hand-washing for most visitors and anti-viral, anti-fungal, and anti-biotic meds.

Thursday will be much the same, except for a football game Arizona vs. Oregon. Boredom is mounting. I guess that means I’m starting to get better.

NEXT: Zero Hair Day

© 2014 James Tenser